The following is a description of a six week old baby in Guatemala City, who has been diagnosed with Down’s Syndrome, and will need to have surgery to repair a perforation on his heart. If anyone knows of a mission that could address this need, please either leave a comment below, or click on the “Contact Us” tab, above.
“… two Pediatricians confirmed that Javier, who is only 6 weeks old, does have Down’s Syndrome, and he also has a problem with his heart. The cardiologist checked him and did an eco-cardiogram which confirmed that he has two perforations on two different valves of his heart, one of them is smaller than the other, but both need to be watched, because even when the smaller one may close while he grows up, he may need surgery to repair the bigger one in approximately 6 months. Besides asking you to please pray for him, I would appreciate it very much if you could give us some ideas about how to treat his heart issues. Please, let me know if there is a medical mission with Cardiologists coming to perform heart surgeries or something like this, so the baby can be evaluated by them and we may get some more information or help for him.”
Hi, have you looked through Down’s Heart Group’s website? There are information sheets on all heart problems accosiated with Down’s Syndrome. Please get in touch with any questions you have and we’ll try our best to answer them.
Hello,
I will direct this request to Dr. Carol Cottrill, our COTA president and long-time pediatric cardiologist. She is connected with pediatric cardiologists in Guatemala City. Are any of the medical records available for review? If so, email them to me and I will make sure Dr. Cottrill has access to them.
Jody
Hello,
I work at a non profit in Guatemala and my son who has Down Syndrome and he had an open heart surgery due to 3 deffects in his heart. He had his surgery at the Hospital named Unicar who is held by the Aldo Castaneda foundation, this hospital provides health for children with a heart condition and also have social work office, if the family do not have resources for the surgery. Please contact me and i will provide the phone and the person you neeed to contact or visit http://www.fundacionaldocastaneda.org